Chris and his parents discuss some of their early interactions with health care providers, and some of the challenges getting medical 'answers' when you have a child with a developmental disorder. (3:16)

Clinical encounters can provide a portal into understanding patient needs and person-centred care. Communication in interviewing is vital: communicating caring attitudes and actions in tandem. Some patients and populations require extra consideration in clinical settings. Many individuals with developmental disabilities present with cognitive, communication, motor or sensory differences that necessitate adaptations as we prepare and engage them in interviews. The following guidelines provide a summary of steps to “Communicate CARE when you INTERVIEW” a patient with a developmental disability. The principles and practices are broadly applicable and stand to benefit patients as well as clinicians in initial clinical encounters.

Transition to adulthood can be daunting for people with developmental disabilities. The Developmental Disability Primary Care Program (DDPCP) developed SHARE Transition Plan Tools to guide for health care providers to communicate with patients and families about their transition from pediatric services. SHARE spells out 5 key areas for planning transition: Supports for Communication & Capability; Healthcare Transition & Transfer; Activities & Engagement; Relationships & Well-being; Exploring Services & Supports. Transition planning involves setting goals with youth and families in these areas over time. “SHARE” is also the essence of the collaborative process. 5 unique families SHARE their experiences with these 5 realms of shared transition planning. Visit the DDPCP website (https://ddprimarycare.surreyplace.ca/) Download the Health Care Transition Tools (SHARE Transition Plan & Checklist, Transfer Tools) https://ddprimarycare.surreyplace.ca/wp-content/uploads/2019/09/2.6-TAY-Transition-Transition-Plan.pdf