Grace was born in 1988, and was diagnosed with autism at the age of five. Grace’s early years proved to be a mix of fascinating and challenging experiences for her and her family. They have explored many avenues through the healthcare system, some more successful than others. We are fortunate to hear about their experiences and the wisdom gained from this journey. Grace showed an interest in art from an early age. Over the years, her love for artistic expression has evolved from a fun pastime to a blossoming career. As an individual affected by autism, Grace experiences heightened sensory perceptions. She is believed to have Synesthesia, the intermingling of senses, where music has colour, and colour has smell. This sensory acuity is also visible in her art, as she combines patterns and textures with strong use of colour in ways that reflect both the chaos and beauty of her experiences living with autism. Featured in this video is Grace, her parents Gerry and Janet, and their former caregiver, family friend and medical student, Amanda Ritsma. Be sure to check out Grace’s art gallery and video! Grace's Art: http://www.artbygrace.ca/ Be sure to check out this video with more about Grace, her life and family: https://www.youtube.com/watch?v=UYUefl6p61Q
Grace was born in 1988, and was diagnosed with autism at the age of five. Grace’s early years proved to be a mix of fascinating and challenging experiences for her and her family. They have explored many avenues through the healthcare system, some more successful than others. We are fortunate to hear about their experiences and the wisdom gained from this journey. Grace showed an interest in art from an early age. Over the years, her love for artistic expression has evolved from a fun pastime to a blossoming career. As an individual affected by autism, Grace experiences heightened sensory perceptions. She is believed to have Synesthesia, the intermingling of senses, where music has colour, and colour has smell. This sensory acuity is also visible in her art, as she combines patterns and textures with strong use of colour in ways that reflect both the chaos and beauty of her experiences living with autism. Featured in this video is Grace, her parents Gerry and Janet, and their former caregiver, family friend and medical student, Amanda Ritsma. Be sure to check out Grace’s art gallery and video! Grace's Art: http://www.artbygrace.ca/ Be sure to check out this video with more about Grace, her life and family: https://www.youtube.com/watch?v=UYUefl6p61Q
Attitudes of Patients with a Developmental Disability Towards Health Care Students. The objective was to identify the attitudes, comfort level and preferences of individuals with DD toward student involvement in clinical encounters.
Attitudes of Patients with a Developmental Disability Towards Health Care Students. The objective was to identify the attitudes, comfort level and preferences of individuals with DD toward student involvement in clinical encounters.
Diagnostic framework for behaviours that challenge. A flowchart meant to guide family physicians or psychiatrists when a patient is brought in because of mental distress or behavioural concerns. Reproduced from Bradley E, Korossy M. HELP with behaviours that challenge. J Dev Disabil 2016;22(2):101-20. Available from: http://oadd.org/wp-content/uploads/2016/12/41023-JoDD-22-2-v10f-101-120-Bradley-and-Korossy.pdf Copyright Elspeth Bradley, 2016
Diagnostic framework for behaviours that challenge. A flowchart meant to guide family physicians or psychiatrists when a patient is brought in because of mental distress or behavioural concerns. Reproduced from Bradley E, Korossy M. HELP with behaviours that challenge. J Dev Disabil 2016;22(2):101-20. Available from: http://oadd.org/wp-content/uploads/2016/12/41023-JoDD-22-2-v10f-101-120-Bradley-and-Korossy.pdf Copyright Elspeth Bradley, 2016
Drs Kerry Boyd, Teresa Carter, Karen Harman, Olaf Kraus de Camargo, Bill Mahoney, and Ronit Mesterman share the intrigue and rewards of working with families
Drs Kerry Boyd, Teresa Carter, Karen Harman, Olaf Kraus de Camargo, Bill Mahoney, and Ronit Mesterman share the intrigue and rewards of working with families
Grace was born in 1988, and was diagnosed with autism at the age of five. Grace’s early years proved to be a mix of fascinating and challenging experiences for her and her family. They have explored many avenues through the healthcare system, some more successful than others. We are fortunate to hear about their experiences and the wisdom gained from this journey. Grace showed an interest in art from an early age. Over the years, her love for artistic expression has evolved from a fun pastime to a blossoming career. As an individual affected by autism, Grace experiences heightened sensory perceptions. She is believed to have Synesthesia, the intermingling of senses, where music has colour, and colour has smell. This sensory acuity is also visible in her art, as she combines patterns and textures with strong use of colour in ways that reflect both the chaos and beauty of her experiences living with autism. Featured in this video is Grace, her parents Gerry and Janet, and their former caregiver, family friend and medical student, Amanda Ritsma. Be sure to check out Grace’s art gallery and video! Grace's Art: http://www.artbygrace.ca/ Be sure to check out this video with more about Grace, her life and family: https://www.youtube.com/watch?v=UYUefl6p61Q
Grace was born in 1988, and was diagnosed with autism at the age of five. Grace’s early years proved to be a mix of fascinating and challenging experiences for her and her family. They have explored many avenues through the healthcare system, some more successful than others. We are fortunate to hear about their experiences and the wisdom gained from this journey. Grace showed an interest in art from an early age. Over the years, her love for artistic expression has evolved from a fun pastime to a blossoming career. As an individual affected by autism, Grace experiences heightened sensory perceptions. She is believed to have Synesthesia, the intermingling of senses, where music has colour, and colour has smell. This sensory acuity is also visible in her art, as she combines patterns and textures with strong use of colour in ways that reflect both the chaos and beauty of her experiences living with autism. Featured in this video is Grace, her parents Gerry and Janet, and their former caregiver, family friend and medical student, Amanda Ritsma. Be sure to check out Grace’s art gallery and video! Grace's Art: http://www.artbygrace.ca/ Be sure to check out this video with more about Grace, her life and family: https://www.youtube.com/watch?v=UYUefl6p61Q
Five-minute and 39-secs video about how NOT to approach Dan in Urgent Care. Be sure to check out Dan in urgent CARE video for a positive example to compare and contrast.
Five-minute and 39-secs video about how NOT to approach Dan in Urgent Care. Be sure to check out Dan in urgent CARE video for a positive example to compare and contrast.
Momentum choir was established in the Niagara Region in 2007, through the vision of Executive and Artistic Director Mendelt D. Hoekstra, with the assistance of Bethesda Community Services and a grant from the Ontario Trillium Foundation. It is a registered charitable organization and operates under the guidance of a Board of Directors. Since its inception, Momentum has grown to include over 45 talented singers and musicians who are passionate about sharing their joy in music with the world. It has become a sought-after choir that carefully chooses the events and venues at which it will perform. Momentum rehearses weekly in St. Catharines, and all singers are invited to a placement audition.
Momentum choir was established in the Niagara Region in 2007, through the vision of Executive and Artistic Director Mendelt D. Hoekstra, with the assistance of Bethesda Community Services and a grant from the Ontario Trillium Foundation. It is a registered charitable organization and operates under the guidance of a Board of Directors. Since its inception, Momentum has grown to include over 45 talented singers and musicians who are passionate about sharing their joy in music with the world. It has become a sought-after choir that carefully chooses the events and venues at which it will perform. Momentum rehearses weekly in St. Catharines, and all singers are invited to a placement audition.
Megan's mom speaks about her journey having a child with rare disorder and complex medical needs, and interactions with the health care system and providers. (9:43)
Megan's mom speaks about her journey having a child with rare disorder and complex medical needs, and interactions with the health care system and providers. (9:43)
Chris and his parents discuss some of their early interactions with health care providers, and some of the challenges getting medical 'answers' when you have a child with a developmental disorder. (3:16)
Chris and his parents discuss some of their early interactions with health care providers, and some of the challenges getting medical 'answers' when you have a child with a developmental disorder. (3:16)
Rural general practice involves teamwork and community. Experience the pure positive energy of getting to know people with special needs on a very human level… and the medical part flows.
Rural general practice involves teamwork and community. Experience the pure positive energy of getting to know people with special needs on a very human level… and the medical part flows.
The New Vision Advocates (Community Living London) present a visioning exercise into the experience of being a patient without words to express needs. Enter into this scenerio and reflect on how you would want to be treated. Thank you New Vision Advocates!
The New Vision Advocates (Community Living London) present a visioning exercise into the experience of being a patient without words to express needs. Enter into this scenerio and reflect on how you would want to be treated. Thank you New Vision Advocates!
Psychiatrist, Dr. Elspeth Bradley, provides a summary of how to H.E.L.P. when faced with people engaging in behaviours that indicate distress. She has written about and taught this H.E.L.P. approach widely, and we are grateful that she shares her insights in this forum. She has also worked with SpotLight drama and friends in the development of the Curriculum of Caring music video, "H.E.L.P." Check it out in the music video section! Dr Bradley referred to the Journal on Developmental Disabilities article 'Mental Health and Autism: Promoting Autism FaVourable Environments (PAVE).' It can be found online in the Journal on Developmental Disabilities (2013).
Psychiatrist, Dr. Elspeth Bradley, provides a summary of how to H.E.L.P. when faced with people engaging in behaviours that indicate distress. She has written about and taught this H.E.L.P. approach widely, and we are grateful that she shares her insights in this forum. She has also worked with SpotLight drama and friends in the development of the Curriculum of Caring music video, "H.E.L.P." Check it out in the music video section! Dr Bradley referred to the Journal on Developmental Disabilities article 'Mental Health and Autism: Promoting Autism FaVourable Environments (PAVE).' It can be found online in the Journal on Developmental Disabilities (2013).
Dr Yona Lunsky is a Professor and Developmental Disabilities Lead with Deptartment of Psychiatry, University of Toronto. Dr Lunsky's clinical research and work is profoundly influential in improving health care for people with DD. We want to particularly highlight the Health Care Access Research and Developmental Disabilities (H-CARDD) and online resources aimed at positively impacting health and health care for people with DD. Go to http://www.hcardd.ca/ and pass on the news about this work!
Dr Yona Lunsky is a Professor and Developmental Disabilities Lead with Deptartment of Psychiatry, University of Toronto. Dr Lunsky's clinical research and work is profoundly influential in improving health care for people with DD. We want to particularly highlight the Health Care Access Research and Developmental Disabilities (H-CARDD) and online resources aimed at positively impacting health and health care for people with DD. Go to http://www.hcardd.ca/ and pass on the news about this work!
Dr Bruce McCreary, Queens University Professor Emeritus of PsychIatry, is an experienced physician, educator and authour who delivers a compelling message to learners. He brings us all face to face with challenges and rewards of providing medical care to the often neglected population of people with developmental disabilities. Consider this:' Are you part of the solution?'
Dr Bruce McCreary, Queens University Professor Emeritus of PsychIatry, is an experienced physician, educator and authour who delivers a compelling message to learners. He brings us all face to face with challenges and rewards of providing medical care to the often neglected population of people with developmental disabilities. Consider this:' Are you part of the solution?'
Dr Peter Szatmari is a renowned child and youth psychiatrist with extensive experience with people who live with what is now referred to as the autism spectrum. Dr Szatmari shares insights from his experiences, highlighting lessons learned from people on the autism spectrum and the importance of collaborative relationships.
Dr Peter Szatmari is a renowned child and youth psychiatrist with extensive experience with people who live with what is now referred to as the autism spectrum. Dr Szatmari shares insights from his experiences, highlighting lessons learned from people on the autism spectrum and the importance of collaborative relationships.
"Understanding Special Voices" offers glimpses into the lives of five people who communicate uniquely. Those who know them intimately help us to understand their distinct personalities and ways of expressing themselves beyond words. Listen to and learn from the Special Voices of Aziz, Chris, Lizzie, Diana, and Barton. Enjoy your eight minutes with them and your future encounters with people who have special voices! - Video created by Abdullah A.
"Understanding Special Voices" offers glimpses into the lives of five people who communicate uniquely. Those who know them intimately help us to understand their distinct personalities and ways of expressing themselves beyond words. Listen to and learn from the Special Voices of Aziz, Chris, Lizzie, Diana, and Barton. Enjoy your eight minutes with them and your future encounters with people who have special voices! - Video created by Abdullah A.
Sarah and Alison have first hand experience with Healthcare, offering advice to medical students and professionals. They share ways to make everyone more comfortable.
Sarah and Alison have first hand experience with Healthcare, offering advice to medical students and professionals. They share ways to make everyone more comfortable.
Invested in research that points to investment in understanding individual and family needs. “Get to know the person…It’s worth it working through difficult times”.
Invested in research that points to investment in understanding individual and family needs. “Get to know the person…It’s worth it working through difficult times”.
Dr. Peter Rosenbaum reveals developmental pediatric pearls of wisdom as he interacts with 3-year-old Sophia and her mother. Dr. Rosenbaum is a professor of paediatrics at McMaster University and co-founder of CanChild Center for Childhood Disability Research (CanChild: Development in the Rewarding Healthcare Experience). For more pearls, explore the CanChild Center for Childhood Disability Research website and the famous F Words of Childhood Disability. Young Sophia and her mom share wisdom through their earlier Curriculum of Caring video (Sophia: gifts of wisdom for parents and professionals.)
Dr. Peter Rosenbaum reveals developmental pediatric pearls of wisdom as he interacts with 3-year-old Sophia and her mother. Dr. Rosenbaum is a professor of paediatrics at McMaster University and co-founder of CanChild Center for Childhood Disability Research (CanChild: Development in the Rewarding Healthcare Experience). For more pearls, explore the CanChild Center for Childhood Disability Research website and the famous F Words of Childhood Disability. Young Sophia and her mom share wisdom through their earlier Curriculum of Caring video (Sophia: gifts of wisdom for parents and professionals.)
Dr. Bassett is a psychiatrist and professor (University of Toronto, Department of Psychiatry) with a wealth of wisdom. She has led many clinical, educational and research initiatives. She is the Director of the internationally renowned Dalglish Family 22q Clinic at the Toronto General Hospital, holds the Dalglish Chair in 22q11.2 Deletion Syndrome at the University of Toronto and University Health Network, and is the Director of the Clinical Genetics Research Program, Centre for Addiction and Mental Health. In this video, Dr. Anne Bassett shares her experiences and expertise, discussing the importance of genetics in practice and in people’s lives. To learn more about 22q11.2 deletion syndrome, care across the lifespan for patients and families, and access more from Dr. Bassett and colleagues, please visit 22q.ca
Dr. Bassett is a psychiatrist and professor (University of Toronto, Department of Psychiatry) with a wealth of wisdom. She has led many clinical, educational and research initiatives. She is the Director of the internationally renowned Dalglish Family 22q Clinic at the Toronto General Hospital, holds the Dalglish Chair in 22q11.2 Deletion Syndrome at the University of Toronto and University Health Network, and is the Director of the Clinical Genetics Research Program, Centre for Addiction and Mental Health. In this video, Dr. Anne Bassett shares her experiences and expertise, discussing the importance of genetics in practice and in people’s lives. To learn more about 22q11.2 deletion syndrome, care across the lifespan for patients and families, and access more from Dr. Bassett and colleagues, please visit 22q.ca
Dr. Nick Kates, (professor and chair of the department of psychiatry & behavioural neurosciences, McMaster University) discusses compassionate person and family-centred care as transformative for patient experience and systems. A transformative message!
Dr. Nick Kates, (professor and chair of the department of psychiatry & behavioural neurosciences, McMaster University) discusses compassionate person and family-centred care as transformative for patient experience and systems. A transformative message!
Transition to adulthood can be daunting for people with developmental disabilities. The Developmental Disability Primary Care Program (DDPCP) developed SHARE Transition Plan Tools to guide for health care providers to communicate with patients and families about their transition from pediatric services. SHARE spells out 5 key areas for planning transition: Supports for Communication & Capability; Healthcare Transition & Transfer; Activities & Engagement; Relationships & Well-being; Exploring Services & Supports. Transition planning involves setting goals with youth and families in these areas over time. “SHARE” is also the essence of the collaborative process. 5 unique families SHARE their experiences with these 5 realms of shared transition planning. Visit the DDPCP website (https://ddprimarycare.surreyplace.ca/) Download the Health Care Transition Tools (SHARE Transition Plan & Checklist, Transfer Tools) https://ddprimarycare.surreyplace.ca/wp-content/uploads/2019/09/2.6-TAY-Transition-Transition-Plan.pdf
Transition to adulthood can be daunting for people with developmental disabilities. The Developmental Disability Primary Care Program (DDPCP) developed SHARE Transition Plan Tools to guide for health care providers to communicate with patients and families about their transition from pediatric services. SHARE spells out 5 key areas for planning transition: Supports for Communication & Capability; Healthcare Transition & Transfer; Activities & Engagement; Relationships & Well-being; Exploring Services & Supports. Transition planning involves setting goals with youth and families in these areas over time. “SHARE” is also the essence of the collaborative process. 5 unique families SHARE their experiences with these 5 realms of shared transition planning. Visit the DDPCP website (https://ddprimarycare.surreyplace.ca/) Download the Health Care Transition Tools (SHARE Transition Plan & Checklist, Transfer Tools) https://ddprimarycare.surreyplace.ca/wp-content/uploads/2019/09/2.6-TAY-Transition-Transition-Plan.pdf
Dr William Sullivan is a family physician and bio-ethicist who has lead the Primary Care Initiative for People with Developmental Disabilities (DD) in Ontario. Dr Sullivan provides an overview of the Primary Care Initiative guidelines, tools and web-based resources aimed at addressing the particular health issues of adults with DD. These valuable resources are used internationally and available at www.surreyplace.on.ca.
Dr William Sullivan is a family physician and bio-ethicist who has lead the Primary Care Initiative for People with Developmental Disabilities (DD) in Ontario. Dr Sullivan provides an overview of the Primary Care Initiative guidelines, tools and web-based resources aimed at addressing the particular health issues of adults with DD. These valuable resources are used internationally and available at www.surreyplace.on.ca.
Dr Kerry Boyd, Associate Clinical Professor, McMaster University, Department of Psychiatry and Behavioral Neurosciences, gives a succinct summary of approaches that “Communicate CARE.” Check out the “ INTERVIEW with CARE” companion guide for more on engaging and communicating with those who present with DD.
Dr Kerry Boyd, Associate Clinical Professor, McMaster University, Department of Psychiatry and Behavioral Neurosciences, gives a succinct summary of approaches that “Communicate CARE.” Check out the “ INTERVIEW with CARE” companion guide for more on engaging and communicating with those who present with DD.
Bethesda's SpotLight Drama and friends have a new way to do about wrap around care. Into rap? Join in the 'Bio-Psycho-Social Wrap Around.' Unforgettable!
Bethesda's SpotLight Drama and friends have a new way to do about wrap around care. Into rap? Join in the 'Bio-Psycho-Social Wrap Around.' Unforgettable!
"Compassion" responds to need. SpotLight Drama, Momentum Choir and friends show compassion in this original music video: " I Will Love!" Let's do likewise...
"Compassion" responds to need. SpotLight Drama, Momentum Choir and friends show compassion in this original music video: " I Will Love!" Let's do likewise...
Clinical encounters can provide a portal into understanding patient needs and person-centred care. Communication in interviewing is vital: communicating caring attitudes and actions in tandem. Some patients and populations require extra consideration in clinical settings. Many individuals with developmental disabilities present with cognitive, communication, motor or sensory differences that necessitate adaptations as we prepare and engage them in interviews. The following guidelines provide a summary of steps to “Communicate CARE when you INTERVIEW” a patient with a developmental disability. The principles and practices are broadly applicable and stand to benefit patients as well as clinicians in initial clinical encounters.
Clinical encounters can provide a portal into understanding patient needs and person-centred care. Communication in interviewing is vital: communicating caring attitudes and actions in tandem. Some patients and populations require extra consideration in clinical settings. Many individuals with developmental disabilities present with cognitive, communication, motor or sensory differences that necessitate adaptations as we prepare and engage them in interviews. The following guidelines provide a summary of steps to “Communicate CARE when you INTERVIEW” a patient with a developmental disability. The principles and practices are broadly applicable and stand to benefit patients as well as clinicians in initial clinical encounters.
The Northern Ontario School of Medicine covers vast geographic and educational terrain. Virtual Academic Rounds connect students and preceptors across Northern clinical settings. A Curriculum of Collaboration with the Northern Network of Specialized Care encourages holistic healthcare that meets needs. Learn about it here...more NOSM videos are coming.
The Northern Ontario School of Medicine covers vast geographic and educational terrain. Virtual Academic Rounds connect students and preceptors across Northern clinical settings. A Curriculum of Collaboration with the Northern Network of Specialized Care encourages holistic healthcare that meets needs. Learn about it here...more NOSM videos are coming.
Dr Sandra Fisman is a Professor and the Chair of the Division of Child and Adolescent Psychiatry at Western University, London, Ontario. Dr Fisman reflects on the journeys of families and the need for compassion. She engages us to consider our journeys as caring professionals.
Dr Sandra Fisman is a Professor and the Chair of the Division of Child and Adolescent Psychiatry at Western University, London, Ontario. Dr Fisman reflects on the journeys of families and the need for compassion. She engages us to consider our journeys as caring professionals.
A mother and research coordinator for CanChild Center for Childhood Disability Research speaks to Health Care providers about team work that works well!
A mother and research coordinator for CanChild Center for Childhood Disability Research speaks to Health Care providers about team work that works well!
Marc is an articulate advocate for people who live with disability-related challenges. He shares life lessons with professionals about compassion that helps others pursue their passions.
Marc is an articulate advocate for people who live with disability-related challenges. He shares life lessons with professionals about compassion that helps others pursue their passions.
CanChild Centre for Child Disability Research: Dr Peter Rosenbaum (co-founder) , Dr Jan Willem Gorter (director) and Matt Freeman (researcher) share their perspectives on development and health care.
CanChild Centre for Child Disability Research: Dr Peter Rosenbaum (co-founder) , Dr Jan Willem Gorter (director) and Matt Freeman (researcher) share their perspectives on development and health care.
